It certainly has been quite the while. Sorry. Some is a blur...ok, most. We have been trying to get down to Long Island to visit family since Christmas and it seems we are due/have gotten snow every weekend, Sundays--the days we have time to go down or the girls have been sick. Now this weekend Roger has a writer's retreat and I have grades due Tuesday, so it won't happen again this weekend. Ugh.
We are in a bitter cold spell right now. It was 5 degrees when I woke up today and it only got to about 12 degrees during the day. Yesterday we had a strange snow squall come through and within 20-30 minutes we got 2-3 inches of snow and more cold and incredible wind.
Kath has been sick this week. She was pretty scary. I took her to the doctor's on Tuesday because she had a couple of nights of this harsh sounding cough that made it so she couldn't catch her breath...it was a long sucking in sound as she tried to fill her lungs. Very unsettling. Took her into the bathroom and made it sauna-like...that didn't seem to help. Wrapped a blanket around her, and took her outside, that didn't seem to help. It turned out it was croup. Again.
The doctor (not her regular pediatrician)said she wasn't worried since Kath was eating okay. Of course that egg sandwich she was chomping on in the doctor's office was the last thing she ate until today. That night she ran a fever and continued to cough. Then on Wednesday night she not only was running a fever, having trouble catching her breath, coughing, runny nose and not eating, but her hands began to have tremors. Alex was also home Wednesday and then Thursday because she was coughing with a runny nose...and glassy eyes. I was afraid that whatever Kath had, Alex would get and pass along.
Back to the doctor's we went on Thursday. On Tuesday Kath had been a pretty peepy chickie, Thursday she made me hold her, didn't even want to get dressed -she went in her pjs. She sat listlessly on the couch, at a slant and not even tried to help herself. This time, it was a nurse practitioner, and she said it was an ear infection.
Today Kath finally got up and played some. She also ate. And seems to be on an upswing. Whew. Alex went to school today, but her eyes still look glassy. Hoping she doesn't get it. They said it could have been strep too...but that they were giving Kath the same meds they would give her for the ear infection....
Kath is back to doing hippotherapy. We are on Saturdays. So, after Alex's ballet class, we head out and have a yoga/healing touch session...then riding time. It is amazing how different Kath is with just the time switch. We used to have it on Monday's at 4PM, now we have it Saturdays at 2. Kath says goodbye at the door, gets on the horse 'by herself' and has a great time...much different from the girl I hadd to stay with for the whole therapy session, holding her leg. Alex takes sibling lessons and loves it too! As always.
Kath is in a ballet class at our local arts center. I was going to sign her up at Alex's dance studio but her teacher made a big deal about Kath not being potty trained...despite one other mother telling me that her daughter wasn't trained. I think I ran into my first unprovable case of discrimination, I don't think she wanted to deal with Kath's disabilities. It turned out to be a blessing in disguise--as that usually happens--and we found the local place's teacher used to work as a special education teacher and she loves Kath. Kath will be in her first show in April or May-"A Cinderella Story" and she will a castle mouse. She is tickled. Kath giggles the whole class, the movement and the ability to move and dance brings her so much joy.
I have continued to work on my writing and I am really enjoying it and I think it's halfway decent, but unfortunately, by the time I take care of every body else for the day...I don't even have energy to take care of dishes, I go onto Facebook and see how my hemimoms are doing and try to have some time with other people/moms, sharing stories. I also find myself so drained I sometimes just sit and watch NCIS stories...crazy.
We lost power for several hours this week--Monday. No one else on our block did and when it came on it was in a brown out type situation...the pump wouldn't work--so no water or flushing for about 10 hours. When it finally came back on after 10PM one casualty was the phone. It seems something was fried in the surges, so the answering machine in inoperable, so call my cell if you need to reach us.
We are at yet another crossroads though since we found out this week that our sitter will be totally unavailable for next year. So we went from toying with the idea again of homeschooling~~~(Alex has gone from loving school to telling me she is 'lonely' in school and wants to be homeschooled, her teacher says she's great and wonderful, has friends and all...)and keeping Kath in a spot where she gets more out of one on one...her special ed teacher told me this week that she's worried because she doesn't see that Kath has the stamina for a full time program yet,~~~ to looking at full time programs/day care for Kath and putting Alex in before school care before her full day of school. She doesn't even want to take the bus anymore...she keeps seeing the kids being mean to other kids. But as we have noticed before...something will happen. Something will pick up and a solution will be had...would be nice if it was in the form of a lotto ticket...doesn't even have to be billions...or millions, just enough to catch up on bills so I could take a year or so off...it's good to dream! :)
Well, Alex came down looking for me and I set her up on the couch. Going to bring her back up and snuggle. Time is too fleeting....Enjoy!
PS I'm going to send this out after only a light editing, so please excuse, since I'm sure there will errors and although I go back often to fix the errors, I think you would only see that if you looked at the blog itself afterward. :)
Enjoy!
Hopefully tomorrow I will get to writing about some of the funny stuff....
My attempts at making sense of my world as a mom, a wife, a teacher, a reader and a writer. My attempts at understanding strokes, cerebral palsy, head trauma and what they mean to the learning process.
Saturday, January 30, 2010
Tuesday, December 29, 2009
Yea, more good!
Yesterday was the pediatric dentist appointment for both girls. Alex was great--as always. Kath started to act up, but she watched her sister then sat in my lap and let the dentist count, scrape and brush her teeth. The grey tooth is still hanging in there, little lose but okay. Alex has two 6 year molars coming in as well as two loose bottom teeth.
Today we met with our new neurologist. (Remember our old one moved to Texas.) Kath had just dozed off when we arrived at the hospital--sad that my kids know hospitals so well, but we are so fortunate that Albany Med has so many great doctors. When we went in to see the doctor, she wanted to be held, so I held her. Then she needed to be measured and weighed. She stood by herself and let the nurse do it. She even held out her arm and let her test her blood pressure! No issues. At all. We usually have to grapple with her! When Dr Powers came into the room she was fantastic, she let the doctor test her, she played while we talked and was just amazing. Dr. Powers was impressed with her and said that cognitively she thought she was great, she could see the physical parts could slow her down, but that she was compensating and doing amazing. She even said that she seemed mature for her age and otherwise age appropriate! It was great.
Tomorrow Roger's sister's family is coming for a couple of days. We are very excited to spend some time with them. Looks like Saturday will be our trip to Long Island. We need another vacation. :D
Happy New Year's all!
Edited from original.
Today we met with our new neurologist. (Remember our old one moved to Texas.) Kath had just dozed off when we arrived at the hospital--sad that my kids know hospitals so well, but we are so fortunate that Albany Med has so many great doctors. When we went in to see the doctor, she wanted to be held, so I held her. Then she needed to be measured and weighed. She stood by herself and let the nurse do it. She even held out her arm and let her test her blood pressure! No issues. At all. We usually have to grapple with her! When Dr Powers came into the room she was fantastic, she let the doctor test her, she played while we talked and was just amazing. Dr. Powers was impressed with her and said that cognitively she thought she was great, she could see the physical parts could slow her down, but that she was compensating and doing amazing. She even said that she seemed mature for her age and otherwise age appropriate! It was great.
Tomorrow Roger's sister's family is coming for a couple of days. We are very excited to spend some time with them. Looks like Saturday will be our trip to Long Island. We need another vacation. :D
Happy New Year's all!
Edited from original.
Sunday, December 27, 2009
Top Stuff
So I don't slam you with catch-up stuff...I will do this in list format
1) In November I participated for the second year with NaNoWriMo (National Novel Writing Month). The goal is to write a novel (50,000 words) in one month. I reached my goal...kinda. I did hit 50000 words but it was not very good and with a lot of filler and fluff. But I did stay focused for a month (mostly) on writing and on my story. Yea me.
2) Chris got a job. He is moving to NYC next week, most likely sleeping on couches until he finds a place, but very excited to be finally employed. He is working for Amnesty International, their Planned Parenthood department. He will be moving in with his cousin and a friend once they do find a place, they will be apartment shopping this week (he tried last week when he was down for training, but so far the two places he set up to see canceled on him right beforehand--very professional. Considering what it takes for him to get down there, for them to cancel an hour beforehand is really quite rude. He is starting to see a different side to his romanticized view of New Yorkers, I think.)
3) Alex went to a pulmonary doctor at Albany Med Hospital. She has asthma and allergies. We now have an air purifier going in her room. Hoping that now that we are on break...she might recoup and heal. She is still the same amazingly happy and upbeat girl though.
4) Christmas was great. The girls were so excited. We tracked Santa on a NORAD site and got to learn a little about different parts of the world while doing it. They were thrilled when they came downstairs in the morning and Santa left a note; ate the cookies and drank the milk; his reindeer ate the special food (oatmeal with some kind of glitter to sparkle in the moonlight); and they saw the piles of gifts. Some fun gifts were the dolls that look like them and had matching outfits (from Avon--not American Dolls!), assorted games and books and other dolls. The boys got things they requested books, games etc. Roger and I were thrilled with our gifts too, books, the new John Adams movie,music, etc. and with just having everyone home for the day!!! The family gift was a Wii Fit. (Nick gave us his Wii system and we just had to buy the Fit component.) It has been a blast to see everyone doing the activities on it, I'm still trying to figure it out. :D We had a big meal of turkey, stuffing, mashed potatoes, turnips, gravy, green been casserole, corn, and biscuits. Homemade apple pie and cookies for dessert. Then the day after the boys went to visit family on LI and we headed out to MA to spend time with family there. It was great to see everyone but a little bittersweet since it was a year ago that Grand Pepe died, on Christmas Day. We both still miss our grandfathers on the holidays.
5) Kath's transition meeting, officially ending Early Intervention and beginning Special Ed services through the school district was last Monday. Now Kath's therapies will decrease in time to 30 minute increments but increase in frequency. So instead of the 8-9 therapies a week we will now be just about doubling them. We have also started Kath in a ballet class in town after school on Thursday's. So on Thursdays she has school from 9-11:30. She comes home and eats lunch, then we head to dance at 1. Physical therapy was at the same time but that will shift slightly now. We end at 1:45 and we have speech at 2. This girls is loving dance class and being a big girl. Loves her tutu and ballet slippers. For the winter the regular hippotherapy has ended but we obtained a much coveted Saturday opening. Yea!!! That will be after Alex's ballet classes.
6) Last night when I mentioned we were going to take a ride to the craft store to get some things for when the cousins come on Wed...Kath said, "Al stay home. Momma and Kath have time (have Momma and Kath time). Al stay home with dada." Haha.
7) Nick is home and we are loving our time with him home.
8) For the second year we didn't send out cards...yet. I might do something for New Years. So Merry Christmas all. It's not that we don't love you...it's just that with grades due, sick children and assorted other thrown-in issues, time was a struggle and that is what we decided had to give...but we have a great photo!!!:D So maybe I will work on New Year's cards! :D
9) Continuing on with the positive thinking...power of intentions and The Secret. I made a list of things for The Secret...thanking for the items I wanted to happen. Already I've seen a couple of the things come to pass. It is a powerful tool to alter how you perceive things so you can attract the good.... I continue to be thankful and I hope you are all well.
10)I have no 10. :D
Have a great day. Peace. Enjoy. Love.
1) In November I participated for the second year with NaNoWriMo (National Novel Writing Month). The goal is to write a novel (50,000 words) in one month. I reached my goal...kinda. I did hit 50000 words but it was not very good and with a lot of filler and fluff. But I did stay focused for a month (mostly) on writing and on my story. Yea me.
2) Chris got a job. He is moving to NYC next week, most likely sleeping on couches until he finds a place, but very excited to be finally employed. He is working for Amnesty International, their Planned Parenthood department. He will be moving in with his cousin and a friend once they do find a place, they will be apartment shopping this week (he tried last week when he was down for training, but so far the two places he set up to see canceled on him right beforehand--very professional. Considering what it takes for him to get down there, for them to cancel an hour beforehand is really quite rude. He is starting to see a different side to his romanticized view of New Yorkers, I think.)
3) Alex went to a pulmonary doctor at Albany Med Hospital. She has asthma and allergies. We now have an air purifier going in her room. Hoping that now that we are on break...she might recoup and heal. She is still the same amazingly happy and upbeat girl though.
4) Christmas was great. The girls were so excited. We tracked Santa on a NORAD site and got to learn a little about different parts of the world while doing it. They were thrilled when they came downstairs in the morning and Santa left a note; ate the cookies and drank the milk; his reindeer ate the special food (oatmeal with some kind of glitter to sparkle in the moonlight); and they saw the piles of gifts. Some fun gifts were the dolls that look like them and had matching outfits (from Avon--not American Dolls!), assorted games and books and other dolls. The boys got things they requested books, games etc. Roger and I were thrilled with our gifts too, books, the new John Adams movie,music, etc. and with just having everyone home for the day!!! The family gift was a Wii Fit. (Nick gave us his Wii system and we just had to buy the Fit component.) It has been a blast to see everyone doing the activities on it, I'm still trying to figure it out. :D We had a big meal of turkey, stuffing, mashed potatoes, turnips, gravy, green been casserole, corn, and biscuits. Homemade apple pie and cookies for dessert. Then the day after the boys went to visit family on LI and we headed out to MA to spend time with family there. It was great to see everyone but a little bittersweet since it was a year ago that Grand Pepe died, on Christmas Day. We both still miss our grandfathers on the holidays.
5) Kath's transition meeting, officially ending Early Intervention and beginning Special Ed services through the school district was last Monday. Now Kath's therapies will decrease in time to 30 minute increments but increase in frequency. So instead of the 8-9 therapies a week we will now be just about doubling them. We have also started Kath in a ballet class in town after school on Thursday's. So on Thursdays she has school from 9-11:30. She comes home and eats lunch, then we head to dance at 1. Physical therapy was at the same time but that will shift slightly now. We end at 1:45 and we have speech at 2. This girls is loving dance class and being a big girl. Loves her tutu and ballet slippers. For the winter the regular hippotherapy has ended but we obtained a much coveted Saturday opening. Yea!!! That will be after Alex's ballet classes.
6) Last night when I mentioned we were going to take a ride to the craft store to get some things for when the cousins come on Wed...Kath said, "Al stay home. Momma and Kath have time (have Momma and Kath time). Al stay home with dada." Haha.
7) Nick is home and we are loving our time with him home.
8) For the second year we didn't send out cards...yet. I might do something for New Years. So Merry Christmas all. It's not that we don't love you...it's just that with grades due, sick children and assorted other thrown-in issues, time was a struggle and that is what we decided had to give...but we have a great photo!!!:D So maybe I will work on New Year's cards! :D
9) Continuing on with the positive thinking...power of intentions and The Secret. I made a list of things for The Secret...thanking for the items I wanted to happen. Already I've seen a couple of the things come to pass. It is a powerful tool to alter how you perceive things so you can attract the good.... I continue to be thankful and I hope you are all well.
10)I have no 10. :D
Have a great day. Peace. Enjoy. Love.
Friday, November 20, 2009
So much has happened, let’s see if I can catch you up. Alex has been sick since the second week of school. She has been to the doctors all but two weeks since the second week of Sept. She went from an upper respiratory infection, to pneumonia, to asthma, to throwing up, to another bout with pneumonia, to more with allergies, to some white spots (viral) on her throat. She is tired from fighting off all these things, so when she looks tired, I keep her home. During this time she also ran fevers twice---on Wed nights—go figure! She will see a pulmonary doctor the first week of December. So glad she is my healthy kid. We finally got them dose one of the H1N1 vaccine this past Monday.
Nick was so sick that he missed close to two weeks of school and had to drop out of one of his classes because the teacher said he couldn’t make up all the work since much of it was in-class work.
Chris and Kath—usually my two sickies have actually been better than the other two! Although battling odd things here and there, they are good.
We had a visit by Nana Linda and Grandpa Bob from Florida and we all enjoyed our reconnect time. We hope to see them soon.
We had some really great days intermixed with some challenging times. Kath has been going to preschool and doing really well. Some days she does better than others but she is mixing with in the kids, getting used to the transitions and getting along with other kids. She looks forward to going to school, getting library books and painting. We have clothesline across the doorway of the playroom and the entrance to the living room so that we can hang the artwork and projects for the girls. It’s like an art gallery.
Kath runs around the playground at school—the whole playground—and has fun climbing the jungle gym, but since she has the vision issues she has a little problem with kids running past her and running almost through her and almost knocking her down.
For the past two weeks Robin (our ‘nanny’ for the days I am working) or I stay outside the room while Kath navigates her school day without too much outside assistance. She is amazing. We had been behaving as her one-on-one aide until I began to see that we really seemed to be stifling her ability to have friendships and a connection with her teachers. She was also not able to work on becoming her own advocate and this chickie NEEDS to know how to ask for help, like none of my other children have. So in my desire to keep her the closest…I have to let her go sometimes, the most. This mom-job sucks sometimes in the most heartbreaking ways.
We still go out on the playground with her though because she needs a lot of help.
She had a great birthday and party with lots of love surrounding her. Can't believe she's three. We invited people who have helped us truly keep our heads on straight for the past year, we are fortunate to have such good friends/family. It was disappointing, but understandable that not everyone could come.
Kath had a sleep-deprived EEG on Wednesday. So on Tuesday we had to keep her awake for three hours later and wake her up 2 hours earlier. So we watched ‘Up’ and went to bed at 10. Then we got up at 5 ( I cheated here--since she usually does get up that early--but...). Our morning was so tight we didn’t have ANY wiggle room. Chris was on LI so I couldn’t even ask him to help out. I needed to have Alex catch the bus, then run straight to Albany Med. Of course she missed the bus and we had to wait for 25 minutes for the bus to loop back around (couldn’t drop her off because I never signed up for before-school-care and she would have gotten there too early). The bus came 5 minutes before I was expected to be at Albany Med—which is about 40 minutes away. Hit traffic—or at least people who drove the speed limit. Then I also couldn’t find a parking spot until we reached the roof. Ran in and apologized to everyone I saw. Still got yelled at by the lady behind the desk “You were supposed to be at check in at 8:45!’ ‘I am so sorry. They called up when I got here.” Then even the technician was annoyed and I thought stay calm, this won’t help Kath if everybody is excited. So I apologized another three times—to each of the women in that office. Tried to stay calm so Kath wouldn’t get riled and she might have the ability to fall asleep. Haha.
I really worked on my positive intentions and breathing techniques. And even though it was not a smooth experience I felt so much more in control and therefore it wasn’t upsetting for Kath. This was such a powerful feeling because so much of our lives are out of control, so it was a great lesson. Especially since this AM Roger's car broke down at 4AM and we had to scramble to get Chris (thank god he was home!) to pick him up, grab my car and head back out to finish his papers, he called into work so he could deal with the car issues and he had to drive me to school). (He then had to take care of the girls--I left him quite the elaborate list...:D Bring Alex to stop at...be sure to have Kath's backpack...he was exhausted and said work was easier--he'll forget that by tomorrow! :D).
Still…when we first got in the room, Kath folded her arms, wouldn’t sit in the chair, said no and in general showed her stubborn side. The tech thought we would not be able to use the ‘easier and softer’ method of positioning the probes on Kath’s head, but I asked her to give it a chance, but she said she didn’t have a lot of time.
But she tried and Kath proved to her how great she could be. She sat still, watched Snow White, whimpered a bit during a few parts of the process but otherwise was good—I also rubbed some lavender on her beforehand to calm her. The tech was able to put a soft adhesive on the 20 something probes on Kath’s head then wrap a cloth around her head to keep them positioned. When we had to shut off the TV for the actual test though...I thought if Albany Med was smart they'd fix it so the kids could drift off to sleep while watching TV...not give the smallest rooms so you couldn't have the TV plugged in and still turn the chair so it faces....Anyway.
No results yet. We don’t actually have a neurologist yet—we see her new one at the end of December (her old one moved to Texas).
Afterward I picked up some lunch and drove to the airport where I sipped some coffee and wrote while she snoozed a bit. When she woke up she was very happy to be at the airport and was asking where the planes were. “Where planes go?” (palms uplifted with a shoulder shrug). We sat and enjoyed the time. Then went to Barnes and Nobles to get her the sticker book I promised her, but since they didn’t have it she got magnetic dolls and a book with birthday money. Alex, Kath and I had stopped at the airport after the doctor's appointment Monday night and enjoyed our dinner there. Fun stuff. They love planes as much as I do.
Kath also saw her orthopedic doctor in October and he was impressed with her progress.
She was in a Halloween Parade for school. It was really tough for me because we had to walk around town and go trick or treating at a few local businesses. She was delighted. She was dressed at Thumbalina. Wings and all. But many people lower the bowl of candy and allow the kids to chose their own candy, and although that may have seemed nice and generous, for kids with cerebral palsy and a lack of fine motor skills…my heart was in my throat each time. The odd steps and pavement were so scary to watch her try to maneuver. But she did it. When she reached for the candy her hand would hover over the basket and circle around. The candy-offerers would say, “Oh you don’t know what one to chose, honey?” And my heart was breaking because I knew that she trying to force her hand to close in on one. Her OT, Laurie, though said to me, “Isn’t that great?? They can’t tell she has a disability? They just think she can’t decide.” That was a great switch in perspective. But it still hurt to watch how she couldn’t open the roped to the bag they made in school for this (but I knew that I needed a bag for her that stayed open at the top (thanks to Aunt Eileen for providing that)for the big Trick-or Treating with her sister.
Alex was Dorothy from The Wizard of Oz. She used the basket she carried Toto around in to be her Trick-Or-Treat bag. Alex had a Halloween party at her school and Chris got to go in and help out (he held the string high up for the kids to do the donut bopping. He also went on a field trip to the farm to get pumpkins. I’ve had to work both those days and Alex has LOVED having her big bro there! Chris and Abbi also walked around with us--in what turned out to be the rain on Halloween. Good sports.
Alex, Chris and I also finished a good soccer season. Alex scored in her first game and her last game…the only two games she wasn’t sick for. Chris and I received great parent evaluations. It was a lot of fun! Great experience and I met great people.
After that I helped out at Alex’s school book fair one night and listened to some mothers talk about how ‘none of the kindergarten moms’ have stepped up to take on a Daisy troop (youngest level of Girls Scouts). I spoke up and said, “I don’t think any know about it…I know I don’t!” No one really said anything helpful so I went home and started looking into it online. I decided I wanted to do it. So I am going for the training and starting my own troop. Alex’s old speech therapist, soon-to-be-Kath’s new speech therapist volunteered to do it with me. So we are pretty excited.
I decided to do it because I have several really good students who are involved in girls scouts, they do good things. I also don’t like too many other people having more influence on my children when they are so young (I taught Nick’s religion class for 8 years, etc). And I have a lot of things that revolve around Kath (therapy-wise) so I want to make sure that Alex doesn’t get lost in the shuffle.
A couple of cool things. Roger got to go on a weekend retreat with the writer’s group he belongs to. It was good for him to get away for a couple of days in the Adirondacks.
I presented about blogging in front of all teachers and staff in my district…and was even on the news (for two seconds and from really far way! But I was there!!!)
We had our first teacher conference with Alex’s kindergarten teacher and Alex is doing amazingly well. We are working on sight words, writing, reading and numbers. She also receives speech therapy with a wonderful teacher twice a week and loves it.
Things are always cooking here. I’m leaving out some things but basically things are good. Of course it would be easier if we won some money—wouldn’t have to second guess Kath’s therapies and bills would be easier, including paying for Nick's remaining school year. Ahhh. Of course if I never had to carry around Diastat just-in-case Kath ever had a seizure, life would be easier. If I didn’t have to worry about how Kath is processing and seeing and speaking and manipulating her fingers and feet, life would be easier.
But we are good. Life is good…but if you want to buy a Lotto ticket …we wouldn’t say no to any sharing!! :D
Saturday, October 3, 2009
This week at home
And it truly has been a week at home. Kath stayed home from school Thursday and Alex Friday. Roger and I have been fighting off the sickness...still. Chris is sick, but at Bennington this weekend for Trustee's Weekend. He was chosen in June to be the newest trustee member. Unfortunately he's fighting off the ick too.
I kept Alex home on Friday because her cough still hasn't gone away...and actually sounded worse. And because she sounded wheezy Thursday night. No fever though. Not since last week anyway. But when we went back to the doctor...and Kath was fantastic this time...she knew SHE wasn't going to checked...Dr Schottler-Thal could hear that her lungs didn't sound right, could hear the wheeze. She didn't bother to do the x-ray since indicators pointed to what she thought and she would treat it the same....It's Walking Pneumonia treated with antibiotics, fluids, rest and love. Of course I keep putting eucalyptus and peppermint on her too....
Kath's nose is still running too. She is looking better though.
Nick is fighting off a cold at school too, but sloughing through.
Let's see...a couple of fun spots this week:
Before I go to school some days, Kath likes to slow things down and snuggle. She wanted to have a bottle and have me hold her. We sat on the couch as we do many times and just talked or sat quietly. Suddenly she pointed to the wood sign above the sliding doors and said, "Wasat say?" This is impressive on a couple of levels. For one, it meant she was scanning with eyes beyond her comfortable peripheral vision. For two, it showed curiosity. For three, she knew that letters meant something...said something. She wanted to know what the sign meant ...said. The sign was a wedding gift from a friend from school. The sign ironically enough says "And they lived happily everafter." :-D
At night when we read I try to have the girls participate in the reading. We found a Dora book "Animal Parade" (yes, titles should be underlined, but my computer here won't allow me). This book has the characters surrounded by the words/verbs they are doing. So Boots has "Swing, Swing, Swing" Dora has "March, March, March" a frog has "Hop, Hop, Hop" around them and so on. When we read that book, each girl takes a turn 'reading' the words. Alex is thrilled to really recognize some of her sight words in our books. Kath is thrilled to 'read' and will often wake poor dadda up (he lays at the end of the bed while we read, with little feet often requesting foot rubs in between his dozing :-D), "Dadda, look I reading...Mach, Mach...." And she has worked hard on saying the ending sounds, need some work on the middle r-sound, but wow, is she impressive or what?? Lots of speech improvements. This week we are going on a field trip--apple picking with her class (Kath's).
Alex has her second Tiger Jam, first one the parents can go to on Tuesday. The very same day and time as Kath's field trip! Of course. I think I will be requesting help to be in two places at once....Really wish our grandparents lived closer sometimes. :-)
As for my writing...I don't really talk too much about it...as much as I thought I would, considering that was my original reason for starting this blog, until the world turned upside down with Kath anyway...I actually have been writing this week. About 3000 words. I printed off all I have so far, 30 pages, with the hope of editing and finding a steady thread to continue with, I feel like I'm all over the place. I'm very excited. I'm finding that I think about my characters and story setting and such as I drive around town and just at odd times during the day--it's almost like they're leaking through into my real life. Or as if they are living friends and/or part of a story I have read by someone else. Sounds strange, but hard to explain. It is as though I'm living this quote :The story I am writing exists, written in absolutely perfect fashion, some place, in the air. All I must do is find it, and copy it. ~Jules Renard, "Diary," February 1895.
Enjoy!
I kept Alex home on Friday because her cough still hasn't gone away...and actually sounded worse. And because she sounded wheezy Thursday night. No fever though. Not since last week anyway. But when we went back to the doctor...and Kath was fantastic this time...she knew SHE wasn't going to checked...Dr Schottler-Thal could hear that her lungs didn't sound right, could hear the wheeze. She didn't bother to do the x-ray since indicators pointed to what she thought and she would treat it the same....It's Walking Pneumonia treated with antibiotics, fluids, rest and love. Of course I keep putting eucalyptus and peppermint on her too....
Kath's nose is still running too. She is looking better though.
Nick is fighting off a cold at school too, but sloughing through.
Let's see...a couple of fun spots this week:
Before I go to school some days, Kath likes to slow things down and snuggle. She wanted to have a bottle and have me hold her. We sat on the couch as we do many times and just talked or sat quietly. Suddenly she pointed to the wood sign above the sliding doors and said, "Wasat say?" This is impressive on a couple of levels. For one, it meant she was scanning with eyes beyond her comfortable peripheral vision. For two, it showed curiosity. For three, she knew that letters meant something...said something. She wanted to know what the sign meant ...said. The sign was a wedding gift from a friend from school. The sign ironically enough says "And they lived happily everafter." :-D
At night when we read I try to have the girls participate in the reading. We found a Dora book "Animal Parade" (yes, titles should be underlined, but my computer here won't allow me). This book has the characters surrounded by the words/verbs they are doing. So Boots has "Swing, Swing, Swing" Dora has "March, March, March" a frog has "Hop, Hop, Hop" around them and so on. When we read that book, each girl takes a turn 'reading' the words. Alex is thrilled to really recognize some of her sight words in our books. Kath is thrilled to 'read' and will often wake poor dadda up (he lays at the end of the bed while we read, with little feet often requesting foot rubs in between his dozing :-D), "Dadda, look I reading...Mach, Mach...." And she has worked hard on saying the ending sounds, need some work on the middle r-sound, but wow, is she impressive or what?? Lots of speech improvements. This week we are going on a field trip--apple picking with her class (Kath's).
Alex has her second Tiger Jam, first one the parents can go to on Tuesday. The very same day and time as Kath's field trip! Of course. I think I will be requesting help to be in two places at once....Really wish our grandparents lived closer sometimes. :-)
As for my writing...I don't really talk too much about it...as much as I thought I would, considering that was my original reason for starting this blog, until the world turned upside down with Kath anyway...I actually have been writing this week. About 3000 words. I printed off all I have so far, 30 pages, with the hope of editing and finding a steady thread to continue with, I feel like I'm all over the place. I'm very excited. I'm finding that I think about my characters and story setting and such as I drive around town and just at odd times during the day--it's almost like they're leaking through into my real life. Or as if they are living friends and/or part of a story I have read by someone else. Sounds strange, but hard to explain. It is as though I'm living this quote :The story I am writing exists, written in absolutely perfect fashion, some place, in the air. All I must do is find it, and copy it. ~Jules Renard, "Diary," February 1895.
Enjoy!
Saturday, September 26, 2009
Reminder. A couple of you have mentioned getting my emails. I am writing on my blog..you are receiving notification through an email. Some of you may actually have been erased from the list by accident, let me know if someone isn't getting this and I will try to add them. But there is a limit to how many I can notify. You might just need to check back to the actual blog. I think there is a highlighted link at the bottom of your 'email' which will bring you to the actual blog page--where the pictures are...and you can bookmark the link as a favorite.
So we have made a very wonderful transition into the chaos that is school and outside activities and therapies and doctor appointments ...oh and work.
Alex absolutely LOVES school. She loves her teacher. She loves learning. She loves the playground. She loves everything. Although her class doesn't always behave--she tells me each day kids had to 'turn their card over'--the warning system for behavior modification--she loves it.
If the whole class is good, they will get a letter. If they spell Popcorn (or Popcorn Party) they will have a party. Guess what letter they are up to? That's right. Three weeks into kindergarten and they haven't even gotten the first P. Poor teacher! One day Alex said the boys got in trouble because they were playing swords with yard sticks. Ironically my 10th graders had done the SAME exact thing that very day! Guess boys never outgrown that! Haha.
She plays school, sings the songs and teaches Kath all the fun parts. Kath will actually sit and be schooled by Alex. Quite funny. Especially when Kath breaks out and runs around laughing, running away from her teacher!
Alex recounts the whole day from the second she gets off the bus, the walk home and then throughout the evening too. She gets off the bus around 4 ish. So we don't have too much time with her before bed. I am so glad that I am home every other day so that I can at least have a bit more time in the morning some days too and not be distracted by my preparations for school.
Kath has made remarkable progress in her school transition too. She listens to the teacher, plays well with the other kids, follows directions and has fun. I haven't been up with her during her school since last week because my school days have coincided with her school days, so Robin has stayed with her. This coming week I won't be there either, sadly. But she has been more focused and listening better than some of the other 'regular ed' kids!
This Wednesday I brought Kath up to the pediatric dentist. I took her to a dentist who was 45 minutes away and this doctor was worth the drive. She definitely had a way with Kath. Kath opened her mouth, let Dr Kim look with a mirror and even count her teeth! So the gray tooth is bruised. At this point we have to just sit and wait and watch. It will either heal and be okay. Fall out. Or get infected and need to be taken out. But she doesn't suggest root canal or any other invasive techniques. So, we wait. And I try healing touch and positive intentions.
Wednesday night was Alex's first Open House. It was for me to go up and be on the other side of that~! :-) Met up with not only her teacher, but her art teacher, gym teacher and her speech therapist. All wonderful people. She's in a great school.
This Thursday, while at school, I got a call from Alex's nurse. She was at the health office not feeling well. Actually Alex's teacher sent her down because she didn't look right. The previous night she had climbed into bed with me with a fever. I gave her some Tylenol and she was her usual perky self, so I sent her to school. I kept her home on Friday so she could rest. But by 9:30 I remembered that it was picture day. So I emailed her teacher, called the school and found out I could bring her up. We ran up to school and had her pictures taken. Then we went to the doctor where we couldn't see our usual doctor and where Kath screamed--yes SCREAMED--the whole time. She was a mess. In her defense she had fallen asleep and woke up without warning/transition time. I took Kath to get checked because her nose has been running all week but it changed to green (sorry to gross you out) that morning. Both girls were diagnosed with upper respiratory infections. They both aren't contagious...supposedly...but are drippy, coughing, tired people. Poor girls.
Of course, we have a jam packed weekend. Dance class. Birthday party. I am chaperoning the homecoming dance tonight. Tomorrow is a soccer game. Then Lori's son's birthday party in MA. Monday so far is just an oil delivery and hippotherapy.
I'm already backing out of things and hoping for rain/cancellation for Sunday's game so they can rest up. Chris is away this weekend, so it would be great if he didn't miss the game, too.
Not very creative in the telling but there it is. I left out all the things Roger and I had around all this...and our illnesses. ;-)
Have a great week.
So we have made a very wonderful transition into the chaos that is school and outside activities and therapies and doctor appointments ...oh and work.
Alex absolutely LOVES school. She loves her teacher. She loves learning. She loves the playground. She loves everything. Although her class doesn't always behave--she tells me each day kids had to 'turn their card over'--the warning system for behavior modification--she loves it.
If the whole class is good, they will get a letter. If they spell Popcorn (or Popcorn Party) they will have a party. Guess what letter they are up to? That's right. Three weeks into kindergarten and they haven't even gotten the first P. Poor teacher! One day Alex said the boys got in trouble because they were playing swords with yard sticks. Ironically my 10th graders had done the SAME exact thing that very day! Guess boys never outgrown that! Haha.
She plays school, sings the songs and teaches Kath all the fun parts. Kath will actually sit and be schooled by Alex. Quite funny. Especially when Kath breaks out and runs around laughing, running away from her teacher!
Alex recounts the whole day from the second she gets off the bus, the walk home and then throughout the evening too. She gets off the bus around 4 ish. So we don't have too much time with her before bed. I am so glad that I am home every other day so that I can at least have a bit more time in the morning some days too and not be distracted by my preparations for school.
Kath has made remarkable progress in her school transition too. She listens to the teacher, plays well with the other kids, follows directions and has fun. I haven't been up with her during her school since last week because my school days have coincided with her school days, so Robin has stayed with her. This coming week I won't be there either, sadly. But she has been more focused and listening better than some of the other 'regular ed' kids!
This Wednesday I brought Kath up to the pediatric dentist. I took her to a dentist who was 45 minutes away and this doctor was worth the drive. She definitely had a way with Kath. Kath opened her mouth, let Dr Kim look with a mirror and even count her teeth! So the gray tooth is bruised. At this point we have to just sit and wait and watch. It will either heal and be okay. Fall out. Or get infected and need to be taken out. But she doesn't suggest root canal or any other invasive techniques. So, we wait. And I try healing touch and positive intentions.
Wednesday night was Alex's first Open House. It was for me to go up and be on the other side of that~! :-) Met up with not only her teacher, but her art teacher, gym teacher and her speech therapist. All wonderful people. She's in a great school.
This Thursday, while at school, I got a call from Alex's nurse. She was at the health office not feeling well. Actually Alex's teacher sent her down because she didn't look right. The previous night she had climbed into bed with me with a fever. I gave her some Tylenol and she was her usual perky self, so I sent her to school. I kept her home on Friday so she could rest. But by 9:30 I remembered that it was picture day. So I emailed her teacher, called the school and found out I could bring her up. We ran up to school and had her pictures taken. Then we went to the doctor where we couldn't see our usual doctor and where Kath screamed--yes SCREAMED--the whole time. She was a mess. In her defense she had fallen asleep and woke up without warning/transition time. I took Kath to get checked because her nose has been running all week but it changed to green (sorry to gross you out) that morning. Both girls were diagnosed with upper respiratory infections. They both aren't contagious...supposedly...but are drippy, coughing, tired people. Poor girls.
Of course, we have a jam packed weekend. Dance class. Birthday party. I am chaperoning the homecoming dance tonight. Tomorrow is a soccer game. Then Lori's son's birthday party in MA. Monday so far is just an oil delivery and hippotherapy.
I'm already backing out of things and hoping for rain/cancellation for Sunday's game so they can rest up. Chris is away this weekend, so it would be great if he didn't miss the game, too.
Not very creative in the telling but there it is. I left out all the things Roger and I had around all this...and our illnesses. ;-)
Have a great week.
Wednesday, September 16, 2009
Kath's first day of nursery school...
How exciting! Tuesday was fantastic.
Many of my fears were assuaged. Hopefully it will continue tomorrow.
Kath had a great time playing with the toys at the school after hanging up her jacket and backpack. She was followed and hugged...continuously by a boy who took a liking to her. Every time I turned my back, he was hugging her. Kath handled it ok, told him no and didn't hit him. Not too sure how patient she will be if he continues tomorrow though....But this same boy later took a little doll from her. She looked at me, (I didn't do anything-I wanted to see what she would do), she looked at him, walked over, stood in front of him, took the doll back and gave him quite the Kath stare as she walked away and either said No or Mine. He didn't bother her again. :-)
I was worried about how she would handle the transitions. When she was told she needed to work on the shape/bus glue project I thought she would say no, freak out, whatever. Instead she put the dolls away that she was playing with and she went and sat next to the teacher and matched up shapes and glued. As if she always handled transitions so well. Ha.
She played with play do, painted a big yellow picture, sat on her mat (has her name and picture) during circle time, had a job (feather tickler-she touched her friends with the feather and that meant it was their turn to get up and sit at the table to get snack). She played outside and overall was excited by school. The Gogurt was tough for her. The snack was yogurt in a squeeze tube. That is hard for her to maneuver. She struggles to hold it, squeeze and push it up. But she managed at least a bit.
When it was over (2 1/2 hours long) the parents started to come. She craned her neck to see and I told her that no one else was coming for her, since I was there already. She looked at me and said, "Hold me mama." Then and only then did she allow herself to lay on my shoulder. She slept through Physical Therapy.
That little girl worked so hard and had such a great first experience. Tomorrow we will have day two--hopefully it will be just as good.
Oh--almost forgot--too tired to go back and rework all this--sorry folks. During library time she sat on the rug...not on me. Even after she chose her book, she went and sat on the rug. She sat with her friend, looked through her book and enjoyed her little bit of freedom.
Today, Alex, Chris and I had soccer practice--it was so much fun--Sunday was our first game and we did so great. The kids are having fun and each kid scored at leat once--Alex scored twice. It felt bad after awhile.
My Open House is tomorrow. Have to get some school work done.
Hope all is good.
Many of my fears were assuaged. Hopefully it will continue tomorrow.
Kath had a great time playing with the toys at the school after hanging up her jacket and backpack. She was followed and hugged...continuously by a boy who took a liking to her. Every time I turned my back, he was hugging her. Kath handled it ok, told him no and didn't hit him. Not too sure how patient she will be if he continues tomorrow though....But this same boy later took a little doll from her. She looked at me, (I didn't do anything-I wanted to see what she would do), she looked at him, walked over, stood in front of him, took the doll back and gave him quite the Kath stare as she walked away and either said No or Mine. He didn't bother her again. :-)
I was worried about how she would handle the transitions. When she was told she needed to work on the shape/bus glue project I thought she would say no, freak out, whatever. Instead she put the dolls away that she was playing with and she went and sat next to the teacher and matched up shapes and glued. As if she always handled transitions so well. Ha.
She played with play do, painted a big yellow picture, sat on her mat (has her name and picture) during circle time, had a job (feather tickler-she touched her friends with the feather and that meant it was their turn to get up and sit at the table to get snack). She played outside and overall was excited by school. The Gogurt was tough for her. The snack was yogurt in a squeeze tube. That is hard for her to maneuver. She struggles to hold it, squeeze and push it up. But she managed at least a bit.
When it was over (2 1/2 hours long) the parents started to come. She craned her neck to see and I told her that no one else was coming for her, since I was there already. She looked at me and said, "Hold me mama." Then and only then did she allow herself to lay on my shoulder. She slept through Physical Therapy.
That little girl worked so hard and had such a great first experience. Tomorrow we will have day two--hopefully it will be just as good.
Oh--almost forgot--too tired to go back and rework all this--sorry folks. During library time she sat on the rug...not on me. Even after she chose her book, she went and sat on the rug. She sat with her friend, looked through her book and enjoyed her little bit of freedom.
Today, Alex, Chris and I had soccer practice--it was so much fun--Sunday was our first game and we did so great. The kids are having fun and each kid scored at leat once--Alex scored twice. It felt bad after awhile.
My Open House is tomorrow. Have to get some school work done.
Hope all is good.
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