So Alex is 4. Yup. She enjoys dressing herself. Usually it is not a big deal since we have no social life. However, every now and then . . . .For example, when we went pumpkin picking she came down the stairs fully dressed -- in layers. She knew she needed layers so that as she became hot, she could peel off her clothes.
What she was confused about was the order of the clothes.
She put her fur-lined leopard print velvet-y shirt on first, which meant it was under everything else. Then a mushroom decorated long sleeve shirt. Then her flowered pink shirt. Then on top of it all was her tank-top t-shirt. Her arms were out a little from her body and she looked a bit like a puffer fish would look if a puffer fish wore layers of clothes for pumpkin picking.
Tomorrow is Alex's CSE meeting up at school and then my meeting with Kath's teacher for the visually impaired. Today we had speech and PT. Discussed was the idea of having Kath attend a preschool program since she is such a social learner, but I still want my baby to be my baby and be home with me. I am selfish, I know. I feel as though I could do the best with her, but I do want her to socialize. I am not ready for her to be away from me for too long, I ache when I have to go to school, any more and I would go crazy.
I also had to bring my car in the shop and it needed a new water pump-other than the time lost driving back and forth-they did give me a borrowed car--it was still under warranty. Whew. Tomorrow I drive down to JFK and pick up Chris from his Scotland trip.
More later.
Tuesday, October 21, 2008
Sunday, October 12, 2008
To the ones I notify by message
I am working on how to send you an automatic email telling you I updated the blog. I see that what it currently does is send you a copy of the text I wrote. I feel like you miss out. :-) Plus I will be updating pics soon and well, you really will miss out. So, feel free to use the email as just a reminder to check the blog and not how you actually read the blog. :-) Enjoy!
Head butting a baby cow
Or at least I don't THINK the cow head butted Kath. Naw, she did it to the cow. Then said, "Owwww!"
We took the girls to Kristy's Barn and went apple picking and pumpkin picking. Alex loved to pick the apples--the higher up the better they were--and Kath loved to take bites out of them--to make sure they were sweet enough. Quite the side show we are. Then we picked pumpkins. That was fun--trying to lift each and every one. I suppose you only know the true value of a pumpkin if you can lift it and its stem doesn't 'bite' you. Coaxing them into walking to the far reaches of the farm, easily reached by hay wagon ride by other parents, we made our kids walk. Alex picked out her favorite bright trees and Kath tripped over every other (getting better) pot hole in the grass. Finally we reached the petting zoo.
At first Alex was a little perturbed by being so close--as in right next to-a calf. But when I reminded her that she rides animals 5 times bigger--and with bigger teeth--she relaxed. Kath had no qualms about going right up to them. As they lay on the ground--probably overfed by kids all day, Kath walked right up them and dumped her whole cup of food in front of the first animal she met. Ah, forgot to explain what we were doing and how to divide up the food so it would last through the whole little paddock. Oh, well. She didn't care that there wasn't anything in her cup. She had a cup and the poor calves didn't know there wasn't anything in it. Might explain why she eventually was head butted, but I will get to that. We saw goslings, ducklings, turkeys, pigmy goats, hens and roosters. We fed (Alex was better at dispersing her fare and getting me to fork over more money for more cups) them all. We also tried to avoid being pecked by terrified turkeys strange little boys chased and cornered. That might explain why THEY (the turkeys, not the boys)took cups of food out of unsuspecting children's hands and then practically wrestled the cups to the ground. This happened to Alex, who looked at me like she was going to cry. She was so amazed at the rudeness of the turkey she stood there stunned and looked at me. A father came over and gave her food for her cup and she snapped out of it. :-D Kath however looked at this and was upset, she started to cry until I made a joke about the turkey being like Bucca when she steals a toy/sneaker/you name it.
We had a lot of fun there. Roger waited outside the fence for us. Not sure if he was hoping to rest (that didn't happen-he was halfway up the fence watching the crazy boys chase the crazy turkeys closer to us) or if he didn't want to try to step gingerly through the assorted animal poop. :-)
As we were leaving the paddock the cows finally decided to get up and walk around. They were bigger than I thought. The girls had to watch out because the cows didn't. Not where they were trodding or where they were pooping. Then one little adorable calf who was chest high on me must have been smelling the food on girls. She nuzzled Alex first, then nuzzled Kath. Then they banged heads.
I am the kind of mother who has belly laughed as Chris puked in my car all the way home from the mall. I laugh when people bang their heads, walk into things, do assorted painful things to themselves. I am a horrible person. I actually feel bad for them, don't get me wrong, but I can't help but see how funny it would look/how funny it looks.
Kath said, "Owwwww" in a bit of an annoyed voice. I started laughing! Then I yelled over to Roger (cuz I am classy too), "Did you see her head butt the cow??" He couldn't because we were behind the ducklings' fence. You will have to take my word for it. It was funny. And the cow walked a little crooked afterward. Kath walked straighter. :-D
Then we walked all the way back, bought our cider donuts and paid for our stuff. The wagon ride was next. And it was free! The girls loved sitting (ahhh) and looking around the whole farm on our hay ride. Alex and I decided we would start a farm in the next few years and have LOTS of animals. I told her she needed to help me take care of the ones we had to get into practice.
The day was great. The boys were missing from it or it would have been perfect. The weather was beautiful. Warm. Blue, blue sky. The leaves look like they were lit from within with the intense reds, oranges, yellows and greens. It was great.
I just wish I had gotten a picture of Kath and the calf bumping heads. :-D
We took the girls to Kristy's Barn and went apple picking and pumpkin picking. Alex loved to pick the apples--the higher up the better they were--and Kath loved to take bites out of them--to make sure they were sweet enough. Quite the side show we are. Then we picked pumpkins. That was fun--trying to lift each and every one. I suppose you only know the true value of a pumpkin if you can lift it and its stem doesn't 'bite' you. Coaxing them into walking to the far reaches of the farm, easily reached by hay wagon ride by other parents, we made our kids walk. Alex picked out her favorite bright trees and Kath tripped over every other (getting better) pot hole in the grass. Finally we reached the petting zoo.
At first Alex was a little perturbed by being so close--as in right next to-a calf. But when I reminded her that she rides animals 5 times bigger--and with bigger teeth--she relaxed. Kath had no qualms about going right up to them. As they lay on the ground--probably overfed by kids all day, Kath walked right up them and dumped her whole cup of food in front of the first animal she met. Ah, forgot to explain what we were doing and how to divide up the food so it would last through the whole little paddock. Oh, well. She didn't care that there wasn't anything in her cup. She had a cup and the poor calves didn't know there wasn't anything in it. Might explain why she eventually was head butted, but I will get to that. We saw goslings, ducklings, turkeys, pigmy goats, hens and roosters. We fed (Alex was better at dispersing her fare and getting me to fork over more money for more cups) them all. We also tried to avoid being pecked by terrified turkeys strange little boys chased and cornered. That might explain why THEY (the turkeys, not the boys)took cups of food out of unsuspecting children's hands and then practically wrestled the cups to the ground. This happened to Alex, who looked at me like she was going to cry. She was so amazed at the rudeness of the turkey she stood there stunned and looked at me. A father came over and gave her food for her cup and she snapped out of it. :-D Kath however looked at this and was upset, she started to cry until I made a joke about the turkey being like Bucca when she steals a toy/sneaker/you name it.
We had a lot of fun there. Roger waited outside the fence for us. Not sure if he was hoping to rest (that didn't happen-he was halfway up the fence watching the crazy boys chase the crazy turkeys closer to us) or if he didn't want to try to step gingerly through the assorted animal poop. :-)
As we were leaving the paddock the cows finally decided to get up and walk around. They were bigger than I thought. The girls had to watch out because the cows didn't. Not where they were trodding or where they were pooping. Then one little adorable calf who was chest high on me must have been smelling the food on girls. She nuzzled Alex first, then nuzzled Kath. Then they banged heads.
I am the kind of mother who has belly laughed as Chris puked in my car all the way home from the mall. I laugh when people bang their heads, walk into things, do assorted painful things to themselves. I am a horrible person. I actually feel bad for them, don't get me wrong, but I can't help but see how funny it would look/how funny it looks.
Kath said, "Owwwww" in a bit of an annoyed voice. I started laughing! Then I yelled over to Roger (cuz I am classy too), "Did you see her head butt the cow??" He couldn't because we were behind the ducklings' fence. You will have to take my word for it. It was funny. And the cow walked a little crooked afterward. Kath walked straighter. :-D
Then we walked all the way back, bought our cider donuts and paid for our stuff. The wagon ride was next. And it was free! The girls loved sitting (ahhh) and looking around the whole farm on our hay ride. Alex and I decided we would start a farm in the next few years and have LOTS of animals. I told her she needed to help me take care of the ones we had to get into practice.
The day was great. The boys were missing from it or it would have been perfect. The weather was beautiful. Warm. Blue, blue sky. The leaves look like they were lit from within with the intense reds, oranges, yellows and greens. It was great.
I just wish I had gotten a picture of Kath and the calf bumping heads. :-D
Saturday, October 11, 2008
"I kissed a girl"
Yup. Got my attention too when my 4 year-old began singing it tonight at dinner, incredibly clearly for a girl who is being considered for speech therapy. I laughed so much, I turned red and she then told me I shouldn't laugh or make her laugh while she was eating. She could choke, ya know. I asked her where she heard that song. On your radio mom. I do have to confess I really like that song, it is sung by Katy Perry. It is a great moving song. I just didn't think it showed. I must have turned it up or sang it myself. :-D Roger just got up and poured himself some more Mountain Dew and tried to keep a straight face as I was bent in half, snorting my food through my nose. Just wasn't what I expected my 4 year-old to be singing at the table. Would have LOVED for the boys to be home. Actually it would have been much more enjoyable--in a mean way--to have a homophobic person hearing it. It was just so fun.
Alex did struggle today at yoga/riding lessons, though. As you know, we have hippotherapy on Saturdays. Yoga is a yoga/healing touch class for Katharina that Alex attends. Mostly because there is no where else for her to go, but she thinks it is her class too and has a blast with Britta. But during the session she tried to tell us something and I could not understand it no matter how many times she repeated it. (I often have to 'interpret' for her since her bigger ideas and vocab get tangled up between her brain and her tongue.) I felt so bad and finally she just broke down crying and curled up in my arms. She was so frustrated. I never did figure it out. We have our CSE meeting next week. Other than that, if you could have seen her eyes so lit up while dancing and riding, she had a great day!
Kath did fantastic too. She has been trying to talk more and more and mimicing what we say. She is growing in leaps and bounds cognitively too. She is amazing. Simply amazing.
Got to see Chris for about 15 minutes today. We began our day by going to dance class, then driving the hour to yoga/healing touch/hippotherapy/lessons. Then we drove two hours to Bennington. We dropped off Chris' passport, new license and a birthday card. We got there just when he had to leave for a film screening for one of his classes. So, the girls and I started to drive back home and ended up in Walmart getting costumes for Halloween. Kath wanted absolutly NOTHING (she kept hitting it away) with the cute witch's costume I chose for her. I thought she would be easy. ha. She ended up agreeing with Tinker Bell. It is a little difficult to shop with someone who doesn't talk and obviously has no idea why on earth we are buying costumes anyway. Alexandra has known since the day she was born that she wanted to be a princess. So she is Cinderella. Then we drove the hour ride back home. Both girls also got slippers and nice warm pjs. We will begin the fireplace tomorrow (I stained the wood behind the fireplace so it is drying still--two years ago it must not have had enough time to dry and it kinda melted in drips, but now it looks great, if I don't say so myself!) and the bedrooms get a little chilly, especially Kath's since we close her bedroom door. With Roger up and about at 1:30AM, we don't want HER up and about at 1:30AM too.
Both girls tried on their costumes while I finished making dinner. So cute to see Kath dressed up , fluttering around with fairy wings and Alex being the Queen Cinderella (or maybe even the evil step-mother Queen)telling Kath what to do. :-) Ah, it's only the beginning . . .
Tomorrow we will be heading out to apple pick and pumpkin pick. I'll take pics!
Enjoy!
Alex did struggle today at yoga/riding lessons, though. As you know, we have hippotherapy on Saturdays. Yoga is a yoga/healing touch class for Katharina that Alex attends. Mostly because there is no where else for her to go, but she thinks it is her class too and has a blast with Britta. But during the session she tried to tell us something and I could not understand it no matter how many times she repeated it. (I often have to 'interpret' for her since her bigger ideas and vocab get tangled up between her brain and her tongue.) I felt so bad and finally she just broke down crying and curled up in my arms. She was so frustrated. I never did figure it out. We have our CSE meeting next week. Other than that, if you could have seen her eyes so lit up while dancing and riding, she had a great day!
Kath did fantastic too. She has been trying to talk more and more and mimicing what we say. She is growing in leaps and bounds cognitively too. She is amazing. Simply amazing.
Got to see Chris for about 15 minutes today. We began our day by going to dance class, then driving the hour to yoga/healing touch/hippotherapy/lessons. Then we drove two hours to Bennington. We dropped off Chris' passport, new license and a birthday card. We got there just when he had to leave for a film screening for one of his classes. So, the girls and I started to drive back home and ended up in Walmart getting costumes for Halloween. Kath wanted absolutly NOTHING (she kept hitting it away) with the cute witch's costume I chose for her. I thought she would be easy. ha. She ended up agreeing with Tinker Bell. It is a little difficult to shop with someone who doesn't talk and obviously has no idea why on earth we are buying costumes anyway. Alexandra has known since the day she was born that she wanted to be a princess. So she is Cinderella. Then we drove the hour ride back home. Both girls also got slippers and nice warm pjs. We will begin the fireplace tomorrow (I stained the wood behind the fireplace so it is drying still--two years ago it must not have had enough time to dry and it kinda melted in drips, but now it looks great, if I don't say so myself!) and the bedrooms get a little chilly, especially Kath's since we close her bedroom door. With Roger up and about at 1:30AM, we don't want HER up and about at 1:30AM too.
Both girls tried on their costumes while I finished making dinner. So cute to see Kath dressed up , fluttering around with fairy wings and Alex being the Queen Cinderella (or maybe even the evil step-mother Queen)telling Kath what to do. :-) Ah, it's only the beginning . . .
Tomorrow we will be heading out to apple pick and pumpkin pick. I'll take pics!
Enjoy!
Thursday, October 9, 2008
When an almost 2 year-old is quiet . . .it's too late.
So . . .I was working on the computer yesterday when I suddenly realized that Kath was quiet. Uh-oh. Too quiet. I ran into the dining room and there she was. A vision of blue. She had opened the blue finger paint top (her Physical Therapist and Occupational Therapist would be proud), found a paint brush and then proceeded to paint the chair cushion (I think she was just trying to move it--with the paint brush, it was on the floor), the potty seat, the chair as well as herself. She was so proud of herself. After I saw her face when I began to reprimand her, I stopped, congratulated her and then cleaned her up so we could get our errands done.
However, I got distracted again. She handled me a bag of marshmellows. So, I opened it and handed her and Alex one. Thanked her for bringing it TO me and then turned around. A few minutes later I realized the whole bag was gone--without the tie, still opened. I didn't have far to look. Kath was sitting around the corner, on the floor, working on hand/eye coordination (ha!!) taking marshmellows out of the bag and licking them. One at a time.
Ah. What a pip.
So, the pumpkin farm was nice. It was terribly expensive though considering I was only there for about 2 hours and the free pumpkin was a really small one. The place is beautiful, it had farm animals and a huge wheel we were able to pretend we were hamsters and roll down a big stretch of farm on. But as I said very expensive--8 dollars for the each of us. Ahh.
I am almost considering starting my own homeschooling group but I don't know anyone who does it. But the group I met showed me how difficult it will be to find people I can fit with. I am so awkward! :-)
Alex is feeling better. She had a second bout with the cold but seems to be healing. The boys are great. Chris turned 21 on Saturday. We drove up and took him, Nick (who came home for the weekend and was at Bennington Friday night), Chris' friend Sean and the girls out to celebrate his day. We then bought a cake, pretended there were candles (his dorm doesn't allow real ones), and sang to him. Can't believe he is 21. Wow. This is harder for me to handle than me turning 40 was. I drove Nick back up to Rochester on Monday. He and I spent Sunday shopping for a new cell phone and sneakers. It was good to have some reconnect time. I miss them both.
I have off today, tomorrow and Monday. Roger had off today, goes to school tomorrow and has off on Monday. So glad. I am so tired again. I actually took a 3 hour nap. Eish. (One night last weekend I slept for 12 hours.) I did get my hair done. Haven't done that since before summer! Feels great! Tonight the girls and I decorated for Halloween. That was hilarious since most of the stuff freaked them both out at first, but then Kath was carrying around, in the crook of her right arm, the Skeleton Man, as if he were her baby doll. Although Alex helped me hang up a spider web she still took wide steps around an oversized spider on the floor.
Katharina is trying to mimic words--she is repeating many, many things. Alex said '13', Kath said '13.' Other words too but if you are not right there to hear it said previously, you wouldn't catch it. But the fact that she is trying to repeat is so amazing! She usually will copy if you ask her, now she is doing it on her own.
Haven't gotten back into writing, but I am hoping tonight. I am working on writing up and sending pictures in for a book a woman on the listerserve is making about kids who had strokes to help new parents get through. I have three book reviews to write for the Canadian Library/Teachers publication and then grading and such.
Hope everyone is great. It is so wonderful to see someone else reads this, though now am nervous about my editing. . . .:-)
However, I got distracted again. She handled me a bag of marshmellows. So, I opened it and handed her and Alex one. Thanked her for bringing it TO me and then turned around. A few minutes later I realized the whole bag was gone--without the tie, still opened. I didn't have far to look. Kath was sitting around the corner, on the floor, working on hand/eye coordination (ha!!) taking marshmellows out of the bag and licking them. One at a time.
Ah. What a pip.
So, the pumpkin farm was nice. It was terribly expensive though considering I was only there for about 2 hours and the free pumpkin was a really small one. The place is beautiful, it had farm animals and a huge wheel we were able to pretend we were hamsters and roll down a big stretch of farm on. But as I said very expensive--8 dollars for the each of us. Ahh.
I am almost considering starting my own homeschooling group but I don't know anyone who does it. But the group I met showed me how difficult it will be to find people I can fit with. I am so awkward! :-)
Alex is feeling better. She had a second bout with the cold but seems to be healing. The boys are great. Chris turned 21 on Saturday. We drove up and took him, Nick (who came home for the weekend and was at Bennington Friday night), Chris' friend Sean and the girls out to celebrate his day. We then bought a cake, pretended there were candles (his dorm doesn't allow real ones), and sang to him. Can't believe he is 21. Wow. This is harder for me to handle than me turning 40 was. I drove Nick back up to Rochester on Monday. He and I spent Sunday shopping for a new cell phone and sneakers. It was good to have some reconnect time. I miss them both.
I have off today, tomorrow and Monday. Roger had off today, goes to school tomorrow and has off on Monday. So glad. I am so tired again. I actually took a 3 hour nap. Eish. (One night last weekend I slept for 12 hours.) I did get my hair done. Haven't done that since before summer! Feels great! Tonight the girls and I decorated for Halloween. That was hilarious since most of the stuff freaked them both out at first, but then Kath was carrying around, in the crook of her right arm, the Skeleton Man, as if he were her baby doll. Although Alex helped me hang up a spider web she still took wide steps around an oversized spider on the floor.
Katharina is trying to mimic words--she is repeating many, many things. Alex said '13', Kath said '13.' Other words too but if you are not right there to hear it said previously, you wouldn't catch it. But the fact that she is trying to repeat is so amazing! She usually will copy if you ask her, now she is doing it on her own.
Haven't gotten back into writing, but I am hoping tonight. I am working on writing up and sending pictures in for a book a woman on the listerserve is making about kids who had strokes to help new parents get through. I have three book reviews to write for the Canadian Library/Teachers publication and then grading and such.
Hope everyone is great. It is so wonderful to see someone else reads this, though now am nervous about my editing. . . .:-)
Wednesday, October 1, 2008
Nothing clever comes to mind--as a title
Everyone is doing well. We are busily back to school, therapies and living. Chris turns 21 this Saturday. How on earth did that happen? Somehow turning 40 didn't mess with my head-maybe too much worrying with Kath??--but NOW having a 21 year-old!! Give me a chair, I need to sit. Nick is coming home this weekend (yeah!!!) and we are heading out to Benny to watch Chris'soccer game and take him out to dinner.
Alex is slowly getting over her cold and Kath is being amazing. I am homeschooling Alex, but it doesn't really feel like it--most of what we do is fun and sprinkled with some 'book work.' Guess that is why I wanted her homeschooled (one reason) we get to play and learn! We are meeting up with a homeschool group at a local farm tomorrow. Kath is uber-aware and into everything. She gets forks for dinner and we have ALL the forks on the table. She 'reads' books. She hops on one foot---then the other! She sings. She runs everwhere. She is amazing--they ALL are.
Roger is doing well, trying to fight off The Cold and stay focused on his teaching.He still amazes me with his strength --to be able to work a second job--every day. Now if Congress passed a package that would give the taxpayers 700 Billion Dollars!!! He could write. I could concentrate and write. Ugh. sigh.
I am having a wonderful year although they cut the funding to the literary magazine I advise. I wasn't going to tell my students, but I did today. I am still going to advise it. I have 14 kids interested this year . . .how can I not??
As I visited and made goals for this month on my writers'forum, I realized AGAIN how I have allowed myself to get distracted. Don't get me wrong--I know I have good reason, but . . .there is more than one fellow writer, who is now published, who when I first joined the forum, they were plodding through like I was. Now they are published. I am still struggling through my story. sigh.
I did just a great two weeks of reading, which is a good sign (for me) that my brain is on the upswing (what a picture THAT is!). I read three of the Twilight series books by Stephenie Meyers in the last week and a half. At the same time as progress reports were due and well, everything else. It has been so great to be able to slide into the storyworld and escape for a little bit.
Off to go do something--read? grade? write?
Nite!
Alex is slowly getting over her cold and Kath is being amazing. I am homeschooling Alex, but it doesn't really feel like it--most of what we do is fun and sprinkled with some 'book work.' Guess that is why I wanted her homeschooled (one reason) we get to play and learn! We are meeting up with a homeschool group at a local farm tomorrow. Kath is uber-aware and into everything. She gets forks for dinner and we have ALL the forks on the table. She 'reads' books. She hops on one foot---then the other! She sings. She runs everwhere. She is amazing--they ALL are.
Roger is doing well, trying to fight off The Cold and stay focused on his teaching.He still amazes me with his strength --to be able to work a second job--every day. Now if Congress passed a package that would give the taxpayers 700 Billion Dollars!!! He could write. I could concentrate and write. Ugh. sigh.
I am having a wonderful year although they cut the funding to the literary magazine I advise. I wasn't going to tell my students, but I did today. I am still going to advise it. I have 14 kids interested this year . . .how can I not??
As I visited and made goals for this month on my writers'forum, I realized AGAIN how I have allowed myself to get distracted. Don't get me wrong--I know I have good reason, but . . .there is more than one fellow writer, who is now published, who when I first joined the forum, they were plodding through like I was. Now they are published. I am still struggling through my story. sigh.
I did just a great two weeks of reading, which is a good sign (for me) that my brain is on the upswing (what a picture THAT is!). I read three of the Twilight series books by Stephenie Meyers in the last week and a half. At the same time as progress reports were due and well, everything else. It has been so great to be able to slide into the storyworld and escape for a little bit.
Off to go do something--read? grade? write?
Nite!
Sunday, September 28, 2008
This week
Alex was evaluated on Tuesday at Village Preschool. I didn't realize that there would be a psych evaluation too, but whew! that went well. :-) Alex showed that she has some oral motor issues with a forward pushing tongue. She works very hard to get her ideas across, but her IQ is very high. She works very hard to make sure we understand her. All this energy we feel, as fortunately so did they, that with all the energy she takes to get her point across it could inhibit her from a foward progression, and it could slow her down socially. We also don't want to just compare her to other kids her age--not when she is so amazing, it feels like we would be holding her back. They suggest she receives therapy for 6 months. They loved her. Even though she had a cold, she was adorable. She is also someone who works hard at pleasing everyone. She knew that Kath had issues. When asked why Kath has therapists come to the house, she answered, "Stroke, in utero." Immediately. I never discussed this with her, she picked it up. She didn't know what that meant, but she is like a little magpie, collecting info.
We went to Conn yesterday to attend a birthday party for the sibling of one the hemi kids we met at the Sturbridge retreat. The girls had a blast. We played at their house and also at a kid play place. Alex had fun running around with other kids (carrying her baby everywhere) and Kath loved trying herself on all sorts of climbing aparatus.
Things here are going well. I have been obsessed with reading the Twilight Series. I have devoured three of the books in one week--they are all about 500+ pages. Since I don't sleep much they are good company. It would be GREAT if my insomnia-like issues would allow me to clean and correct papers, but I am lazy.
Nick is coming home this week. I can't wait to see him; it has been since August. Chris turns 21 this Sat. Wow. How did I get to be this old?
My writing is stagnant but I feel like when I am done absorbing Twilight I might be able to think/write.
I apologize for this being a short and boring post. I want to go read. :-)
We went to Conn yesterday to attend a birthday party for the sibling of one the hemi kids we met at the Sturbridge retreat. The girls had a blast. We played at their house and also at a kid play place. Alex had fun running around with other kids (carrying her baby everywhere) and Kath loved trying herself on all sorts of climbing aparatus.
Things here are going well. I have been obsessed with reading the Twilight Series. I have devoured three of the books in one week--they are all about 500+ pages. Since I don't sleep much they are good company. It would be GREAT if my insomnia-like issues would allow me to clean and correct papers, but I am lazy.
Nick is coming home this week. I can't wait to see him; it has been since August. Chris turns 21 this Sat. Wow. How did I get to be this old?
My writing is stagnant but I feel like when I am done absorbing Twilight I might be able to think/write.
I apologize for this being a short and boring post. I want to go read. :-)
Wednesday, September 24, 2008
Subscription! Followers!
I found this new button. Look to the left side of this page. I think if you click on it you can subscribe and receive notification of when I post. Be a follower too! It is nice to know I am not talking to myself (haha, yes, I am). If you are having problems, email me and I will add you onto a different list myself.
More later on Alexs eval. Girls are both still sick and now I have a scratchy throat.
More later on Alexs eval. Girls are both still sick and now I have a scratchy throat.
Monday, September 22, 2008
I have been a horrible blogger--this one is long
I tend to be the kind of person who shuts down when my world goes crazy. Then afterward I blab to everyone all my revelations. I think I am at one of my revelation times.
Katharina has been showing remarkable progress. She is running--albiet a bit lopsided and a bit scary to watch--but running. I didn't think we would get here until December. If ever. She is recognizing pictures and objects and following simple directions. Considering there isn't much speech it has been difficult to know what she knows cognitively. As she sits on the floor and opens books and makes sounds while pointing to the pictures, I think--whew, maybe . . .she might be okay. Visually she seems to be speeding up a bit with her mental/visual tracking of objects. When she bounces a superball and it bounces into a bag, she can keep her eyes on it and follow it to find it--couldn't do that a couple of weeks ago. She points to purple things and says, pu-pl. However, she points to most other colors and says that too. White is also a fav. Ah, well. Alex painted Kath's right hand nails and Kath will show anyone her 'pretty hand' when asked. She watches Alex dance at ballet and then when we come home, she tries to swirl.
She makes incredible eye contact and she nods her head emphatically; you feel as though she may be trapped by her brain, but she is chiseling her way out. And she knows she will make it out.
She has a cold today, but that did not stop her from running around all day after waking up before 5AM to a sodden bed. Her nose is running a little slower than she is, but that has not stopped her from running to the pantry to feed Bucca as many cookies as she can before I stop her.
Alex is also sick, actually sicker. She has her speech evaluation tomorrow and I am hoping she feels amazingly better tomorrow. She woke me up this morning around 4AM to tell me (by breathing in my face) that she s-i-c-k. Thanks Al. She woke me a couple of days ago and I asked her for 5 more minutes (she gets quite the kick out of that). She said she had two things to tell me. Ok, baby, tell me in 5 minutes. After several attempts to wake me up I finally woke up and said, "Ok, honey. What are your two things?"
"Now I have 5." Then she proceeded to say them really fast, probably afraid I'd fall asleep sitting up. "1-See those trees? (pointing out the window) Don't they look like fairies? 2- I keep wishing for a magic wand, but I never get it. Why? 3- What should I be for Halloween? 4-What is your favorite star? Mine is a magic star so you can make a wish. 5-Why are there only two packages of banana oatmeal in a box (variety flavors)?" Need to be on my toes for this one! Alex drew a picture of me being tired. I have big dark brown circles under my eyes and my hair is wild. Hmmm. (baha!)I told you I have sleep issues!
She continues to impress me with her kindness and patience with Katharina. Kath will pull her hair, take her dolls, grab her cups and steal my lap. Alex will yell, but never hit Kath for yanking tufts of hair; she may pull the dolls out of Kath's hands, but never strikes her; Alex lets her drink from her cup and in turn drinks from her sister's; and Alex nudges her sister over so they both have room on my lap.
As for my brain. I think it is getting better. I came very close to going to the doctor, but decided to try vitamins, positive intentions and letting things go. I gave myself one week to feel something. I did. I have also lost about 11 pounds this summer. The letting go is not easy, but it is liberating, except the first thing I let go is the housework. So the house is a mess, but slowly I am feeling better. Robin made a comment today that I seemed 'brighter.' I feel brighter, more like myself.
It was last August when I began to have the nagging feelings of worry for Kath. I first thought we allowed her to get injured in the bouncey bounce we had for the boys' party. I thought her brain was damaged from the bouncey bounce and that it was my fault. Then I thought she had a brain tumor. She wouldn't play. I have never seen a child not play. She would sit and watch, but not explore. She didn't seem to even want to move. She stopped nursing.
Then once the early intervention began she started to spark. She is doing amazing things. I still worry that the stroke was my fault, but I can't do anything about it now. I sometimes pray it was my fault-- if that will mean she will not be susceptible to another one, as some of the kids are. We work with her everyday, with or without scheduled therapists, but she has therapy 2X on Monday, 2X on Tuesday, 2X on Thursday, sometimes 1X on Friday, and 1X on Saturday. This does not count the soial worker, doctor appointments and any therapy make-ups. Tomorrow I have to call Boston's Children's Hospital back to schedule an appointment for her there- we want to have her eyes and their cognitive connections evaluated.
The last year has been a rollercoaster and I know from the listserve that the ride ain't over yet, but what an amazing ride. I have met incredible people including my own family and friends who have shown a new dimension. Other parents from the retreat this summer-wow, what amazing people.
My husband gets up every morning between 1:30-2:30 AM every morning to work a second job for us. EVERY morning he does this before his real job (teaching) and on weekends. He never complains about it; I whine about the dishes. My sons and my daughter have shown the wonderful strengths of their hearts and transferred it out to new people they have met. Robin, Maddy, Janine and Karen have helped us keep our sanity as I have vented or just melted. My aunt and dad have helped us when we didn't know where else to turn. My friends at school ask and then listen. My wonderful administrators continue to allow me to job share so I can be home every other day. The great people on the listserve are voices in the dark helping me navigate these scary waters. The writer's forum is being so patient and not kicking me out even though I am way behind in crits. My awesome students, past and present, keep my eyes on the big picture. Lori and Donna, I know are just a phone call away, even if I don't speak to them for weeks/months. And the rest of our families who call and check in on us.
This past year has rocked me to my core. Rocked my faith. Forced me learn how to breathe again. Between Kath's diagnosis, Roger's accident, Nick's accidents, Chris' abroad experiences, I am on a different path than I was. I am a different path.
My marriage is stronger and more solid in ways I never imagined a year ago. I have faith, maybe not in any particulr religion, but in a God and the people I live here with. I look at the world a little differently and I prioritize my world differently than I did a year ago.
I hold my kids, husband and friends in true hugs of the heart. I breathe in the sunny days (still don't like the dark ones, but hey, I didn't say I was perfect!) and sit on the floor and play with the girls and Bucca. I read my own books, not just about Kath's stroke. I shut off the TV and talk to my Rog. I text Nick. I email Chris; I drive to see him play soccer whenever he lets me. I sing in the car.
I have a pack of blessings. Yes, my house is a complete disaster-we started projects like the breaking up of the sidewalk; the lawnmower tried to eat a rock and bit itself so our grass is reaching for the sky (yes, we still live here); there is always a pile of wash on the chair in the living room; Lucy doesn't always make it out in time; our basement likes the wet look. It is embarrassing that we have therapists come into our messy home, but . . . but! the oxygen turned back on and Kath lets me rock her and sing to her. She lets me touch and stroke her right arm and leg now. She says, "Momma. I uv ew." Kinda. Mostly she points to her eye, her heart and smiles big at me. Roger healed, Nick walked away from his accidents--even after a tramatic brain injury. Chris is going to Scotland in a couple of weeks to visit his girlfriend Abbi and I am sure this travel experience will be much more delightful than parts of Nicaragua. Alex snuggles and holds my hand and tells me I am so funny.
Life is great. That is my current revelation. And I think it is just as important to mark the great revelations as it is to tell of the tough swings.
Katharina has been showing remarkable progress. She is running--albiet a bit lopsided and a bit scary to watch--but running. I didn't think we would get here until December. If ever. She is recognizing pictures and objects and following simple directions. Considering there isn't much speech it has been difficult to know what she knows cognitively. As she sits on the floor and opens books and makes sounds while pointing to the pictures, I think--whew, maybe . . .she might be okay. Visually she seems to be speeding up a bit with her mental/visual tracking of objects. When she bounces a superball and it bounces into a bag, she can keep her eyes on it and follow it to find it--couldn't do that a couple of weeks ago. She points to purple things and says, pu-pl. However, she points to most other colors and says that too. White is also a fav. Ah, well. Alex painted Kath's right hand nails and Kath will show anyone her 'pretty hand' when asked. She watches Alex dance at ballet and then when we come home, she tries to swirl.
She makes incredible eye contact and she nods her head emphatically; you feel as though she may be trapped by her brain, but she is chiseling her way out. And she knows she will make it out.
She has a cold today, but that did not stop her from running around all day after waking up before 5AM to a sodden bed. Her nose is running a little slower than she is, but that has not stopped her from running to the pantry to feed Bucca as many cookies as she can before I stop her.
Alex is also sick, actually sicker. She has her speech evaluation tomorrow and I am hoping she feels amazingly better tomorrow. She woke me up this morning around 4AM to tell me (by breathing in my face) that she s-i-c-k. Thanks Al. She woke me a couple of days ago and I asked her for 5 more minutes (she gets quite the kick out of that). She said she had two things to tell me. Ok, baby, tell me in 5 minutes. After several attempts to wake me up I finally woke up and said, "Ok, honey. What are your two things?"
"Now I have 5." Then she proceeded to say them really fast, probably afraid I'd fall asleep sitting up. "1-See those trees? (pointing out the window) Don't they look like fairies? 2- I keep wishing for a magic wand, but I never get it. Why? 3- What should I be for Halloween? 4-What is your favorite star? Mine is a magic star so you can make a wish. 5-Why are there only two packages of banana oatmeal in a box (variety flavors)?" Need to be on my toes for this one! Alex drew a picture of me being tired. I have big dark brown circles under my eyes and my hair is wild. Hmmm. (baha!)I told you I have sleep issues!
She continues to impress me with her kindness and patience with Katharina. Kath will pull her hair, take her dolls, grab her cups and steal my lap. Alex will yell, but never hit Kath for yanking tufts of hair; she may pull the dolls out of Kath's hands, but never strikes her; Alex lets her drink from her cup and in turn drinks from her sister's; and Alex nudges her sister over so they both have room on my lap.
As for my brain. I think it is getting better. I came very close to going to the doctor, but decided to try vitamins, positive intentions and letting things go. I gave myself one week to feel something. I did. I have also lost about 11 pounds this summer. The letting go is not easy, but it is liberating, except the first thing I let go is the housework. So the house is a mess, but slowly I am feeling better. Robin made a comment today that I seemed 'brighter.' I feel brighter, more like myself.
It was last August when I began to have the nagging feelings of worry for Kath. I first thought we allowed her to get injured in the bouncey bounce we had for the boys' party. I thought her brain was damaged from the bouncey bounce and that it was my fault. Then I thought she had a brain tumor. She wouldn't play. I have never seen a child not play. She would sit and watch, but not explore. She didn't seem to even want to move. She stopped nursing.
Then once the early intervention began she started to spark. She is doing amazing things. I still worry that the stroke was my fault, but I can't do anything about it now. I sometimes pray it was my fault-- if that will mean she will not be susceptible to another one, as some of the kids are. We work with her everyday, with or without scheduled therapists, but she has therapy 2X on Monday, 2X on Tuesday, 2X on Thursday, sometimes 1X on Friday, and 1X on Saturday. This does not count the soial worker, doctor appointments and any therapy make-ups. Tomorrow I have to call Boston's Children's Hospital back to schedule an appointment for her there- we want to have her eyes and their cognitive connections evaluated.
The last year has been a rollercoaster and I know from the listserve that the ride ain't over yet, but what an amazing ride. I have met incredible people including my own family and friends who have shown a new dimension. Other parents from the retreat this summer-wow, what amazing people.
My husband gets up every morning between 1:30-2:30 AM every morning to work a second job for us. EVERY morning he does this before his real job (teaching) and on weekends. He never complains about it; I whine about the dishes. My sons and my daughter have shown the wonderful strengths of their hearts and transferred it out to new people they have met. Robin, Maddy, Janine and Karen have helped us keep our sanity as I have vented or just melted. My aunt and dad have helped us when we didn't know where else to turn. My friends at school ask and then listen. My wonderful administrators continue to allow me to job share so I can be home every other day. The great people on the listserve are voices in the dark helping me navigate these scary waters. The writer's forum is being so patient and not kicking me out even though I am way behind in crits. My awesome students, past and present, keep my eyes on the big picture. Lori and Donna, I know are just a phone call away, even if I don't speak to them for weeks/months. And the rest of our families who call and check in on us.
This past year has rocked me to my core. Rocked my faith. Forced me learn how to breathe again. Between Kath's diagnosis, Roger's accident, Nick's accidents, Chris' abroad experiences, I am on a different path than I was. I am a different path.
My marriage is stronger and more solid in ways I never imagined a year ago. I have faith, maybe not in any particulr religion, but in a God and the people I live here with. I look at the world a little differently and I prioritize my world differently than I did a year ago.
I hold my kids, husband and friends in true hugs of the heart. I breathe in the sunny days (still don't like the dark ones, but hey, I didn't say I was perfect!) and sit on the floor and play with the girls and Bucca. I read my own books, not just about Kath's stroke. I shut off the TV and talk to my Rog. I text Nick. I email Chris; I drive to see him play soccer whenever he lets me. I sing in the car.
I have a pack of blessings. Yes, my house is a complete disaster-we started projects like the breaking up of the sidewalk; the lawnmower tried to eat a rock and bit itself so our grass is reaching for the sky (yes, we still live here); there is always a pile of wash on the chair in the living room; Lucy doesn't always make it out in time; our basement likes the wet look. It is embarrassing that we have therapists come into our messy home, but . . . but! the oxygen turned back on and Kath lets me rock her and sing to her. She lets me touch and stroke her right arm and leg now. She says, "Momma. I uv ew." Kinda. Mostly she points to her eye, her heart and smiles big at me. Roger healed, Nick walked away from his accidents--even after a tramatic brain injury. Chris is going to Scotland in a couple of weeks to visit his girlfriend Abbi and I am sure this travel experience will be much more delightful than parts of Nicaragua. Alex snuggles and holds my hand and tells me I am so funny.
Life is great. That is my current revelation. And I think it is just as important to mark the great revelations as it is to tell of the tough swings.
Saturday, September 6, 2008
Ta-da!
Can you believe it is raining again? Or that we are back in school already? Both are true.
Roger and I returned to school this week. For myself, I will say--unrested and not ready. Don't get me wrong I love my job, my students, my life, but things at home are so busy and on-task that I wonder how I will be able to accompish my goals.
One goal is to work on muddling through the crazy roller coaster emotions one goes through when dealing with a child who 'has issues.' And no, I don't mean the boys! Just kidding guys. Seriously, some days I feel like I have my head and heart wrapped around Kath's diagnosis and what our job is - to help her reach her full potentional. Then other days I don't want to move, I am energy-less and deflated, and I just want to cry. Please understand (anyone who is thinking I am a weirdo) that I KNOW how good we have it. The oxygen came back on for Katharina! The stroke didn't destroy more brain matter! She is a pip! What I go through has nothing to do with what is really going on in our lives. It seems to be just hormonal or mental. Who knows? But I started taking vitamins, forcing myself to exercise, and trying positive healing/thinking. It has helped that as things rachet up, we also have help from the sidelines to ease some of the craziness.
Kath has been doing tremendous things. She walked past the TV while Alex was watching, I think, Curious George and said, 'Ta-da!' after she heard it spoken. Then after she saw my reaction, she proceeded to say it all day. Then one night we were working on the yard (one of the rainless days) and I had just reached the deck and turned around in time to see Kath sliding down the slide. She had never climbed up by herself before (she had trouble getting her right leg in front of herself). Now she is pretty good at getting up and sliding down, although she sometimes thinks she can stand and serve a sermon at the top, but her balance is still that of a drunken sailor (no offense) so that doesn't end without me running faster than I did in high school.
She still does not really speak clearly. I can understand some of her words, but if you weren't around her like I am, you wouldn't understand her. She had two hippotherapy sessions this week and she also had healing touch and yoga today. She has such an immediate reaction to Britta when she begins, it would make a believer out of all of you. Even if Britta is behind her (and Kath cannot see well peripherally), Kath becomes aggitated and aware very quickly. But after that, once Britta is able to rake through her for a bit, she settles and actually relaxes. You can actually see it. I am so glad my friend Doris introduced me to this. It is amazing.
Alex is doing great although I was ready to flip out yesterday when I became obssessively worried and almost rushed her to the ER. I noticed that she was garbling her words and having a very difficult time talking. Since we don't know why Kath had her stroke, I began checking Alex for any sign of paralisis. Then I asked her to open her mouth and found she had a huge canker sore (again). This girl! She had tried to carry her sister the other day and they both toppled-Kath into Alex's lip. Alex 'caught' her--that's Alex's story. My story is that Alex broke Kath's fall . . . with her own face. Anyway, Alex is notorious for putting her (dirty) fingers into her mouth-so I think she infected her cut innerlip. Poor chick. Friday we dropped off the paperwork for her to be evaluated by a speech therapist, so she is already hard enough to understand and now she talks like she has marbles in her mouth. But I am trying to give her tea-bags and that actually seems to be helping. Did you ever hear of that? Putting a teabag on the canker sore?
Alex and I also began preschool homeschool this week and are having a blast. She also started dance class today. Boys are good and enjoying school. We are going to go visit Chris tomorrow. Roger is good too. A good man.
I am going to go snag some writing time (another goal), so, enjoy!
Roger and I returned to school this week. For myself, I will say--unrested and not ready. Don't get me wrong I love my job, my students, my life, but things at home are so busy and on-task that I wonder how I will be able to accompish my goals.
One goal is to work on muddling through the crazy roller coaster emotions one goes through when dealing with a child who 'has issues.' And no, I don't mean the boys! Just kidding guys. Seriously, some days I feel like I have my head and heart wrapped around Kath's diagnosis and what our job is - to help her reach her full potentional. Then other days I don't want to move, I am energy-less and deflated, and I just want to cry. Please understand (anyone who is thinking I am a weirdo) that I KNOW how good we have it. The oxygen came back on for Katharina! The stroke didn't destroy more brain matter! She is a pip! What I go through has nothing to do with what is really going on in our lives. It seems to be just hormonal or mental. Who knows? But I started taking vitamins, forcing myself to exercise, and trying positive healing/thinking. It has helped that as things rachet up, we also have help from the sidelines to ease some of the craziness.
Kath has been doing tremendous things. She walked past the TV while Alex was watching, I think, Curious George and said, 'Ta-da!' after she heard it spoken. Then after she saw my reaction, she proceeded to say it all day. Then one night we were working on the yard (one of the rainless days) and I had just reached the deck and turned around in time to see Kath sliding down the slide. She had never climbed up by herself before (she had trouble getting her right leg in front of herself). Now she is pretty good at getting up and sliding down, although she sometimes thinks she can stand and serve a sermon at the top, but her balance is still that of a drunken sailor (no offense) so that doesn't end without me running faster than I did in high school.
She still does not really speak clearly. I can understand some of her words, but if you weren't around her like I am, you wouldn't understand her. She had two hippotherapy sessions this week and she also had healing touch and yoga today. She has such an immediate reaction to Britta when she begins, it would make a believer out of all of you. Even if Britta is behind her (and Kath cannot see well peripherally), Kath becomes aggitated and aware very quickly. But after that, once Britta is able to rake through her for a bit, she settles and actually relaxes. You can actually see it. I am so glad my friend Doris introduced me to this. It is amazing.
Alex is doing great although I was ready to flip out yesterday when I became obssessively worried and almost rushed her to the ER. I noticed that she was garbling her words and having a very difficult time talking. Since we don't know why Kath had her stroke, I began checking Alex for any sign of paralisis. Then I asked her to open her mouth and found she had a huge canker sore (again). This girl! She had tried to carry her sister the other day and they both toppled-Kath into Alex's lip. Alex 'caught' her--that's Alex's story. My story is that Alex broke Kath's fall . . . with her own face. Anyway, Alex is notorious for putting her (dirty) fingers into her mouth-so I think she infected her cut innerlip. Poor chick. Friday we dropped off the paperwork for her to be evaluated by a speech therapist, so she is already hard enough to understand and now she talks like she has marbles in her mouth. But I am trying to give her tea-bags and that actually seems to be helping. Did you ever hear of that? Putting a teabag on the canker sore?
Alex and I also began preschool homeschool this week and are having a blast. She also started dance class today. Boys are good and enjoying school. We are going to go visit Chris tomorrow. Roger is good too. A good man.
I am going to go snag some writing time (another goal), so, enjoy!
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